Details about Los Angeles Fibromyalgia Support Groups
When the unexplainable happens, we often chalk it up to a misinterpretation of circumstance. This is particularly true when we were the only ones to witness the experience, as it is difficult to prove these things to people who were not present. Those who suffer with fibromyalgia – a widespread, chronic pain disorder with no scientific explanation – often face the difficulty of trying to justify the way they feel. Due to the fact that signs of fibromyalgia have no known origin, some people find it impossible to believe that it is a real disorder. Fibromyalgia support groups exist for this reason, as they allow those with the illness to connect with people who understand what they are going through. This article will provide details about fibromyalgia support groups in the Los Angeles area.
The Fibomites is a support group based out of Altadena, CA. The tagline for the group is, “Fibromyalgia = backwards-talkin’, fibro-walkin’, bathroom-hoppin’, doctor-shoppin’, pain-hatin’, Fibromites.” It is a support group for those who experience fibromyalgia symptoms, or those who know someone with the disorder. Members with other chronic pain conditions, as well as those who wish to learn more about the signs of fibromyalgia, are also welcome to join, so long as they are not soliciting any products or services. If you join, you are welcome to share your struggles and methods you have used to overcome the difficulties that fibromyalgia symptoms cause. Group members meet at different locations in town, depending on the day. There is also a Facebook group, which allows for online discussions and connecting with others in the group.
The Los Angeles faction of The American Chronic Pain Association (ACPA) offers a Los Angeles fibromyalgia support group, which meets on the first Tuesday of every month, from 2 to 3:30pm. Members convene at the Fairfax Community Center, located at 7929 Melrose Avenue, Los Angeles, 90046. The American Chronic Pain Association is a non-profit organization, and the support group is provided in order to teach people with signs of fibromyalgia (or other chronic pain disorders) how to reduce the impact that the disorder has on occupational and personal aspects of life. In order to join, you must suffer with chronic pain or be related to someone who does.
The Fibromyalgia Treatment Center, located in Los Angeles, recently launched an online support newsgroup, called GUAIGROUP. Occasionally, fibromyalgia support groups will be structured around a sole management method. This group is for people looking to reverse the condition using R. Paul St. Amand M.D.’s guaifenesin protocol, developed in the early 1990’s. The thought behind this technique is that when someone develops signs of fibromyalgia, it is through genetic inheritance. It is believed that an excess of phosphates in the body, which are responsible for regulating cellular energy, causes fibromyalgia. Guaifenesin is thought to eliminate excess phosphates, enabling the body to function normally, thereby reversing fibromyalgia symptoms. This treatment is not approved by the FDA. Anyone who wishes to learn more about this process can access the group; a team of volunteer administrators runs these services.
Los Angeles Fibromyalgia Clinical Trials
Fibromyalgia clinical trials are frequently conducted in Los Angeles in order to determine what treatments are the most useful. During a clinical trial, volunteer participants are administered experimental drugs, therapies, etc., so researchers can assess the efficacy they have at treating fibromyalgia. Participating in a clinical trial may prove beneficial for many reasons, such as:
- Cost-free treatment
- Access to the most modern treatments
- Compensation for partaking in the trial
- Potential receipt of the newest fibromyalgia management tools
Fibromyalgia is a chronic pain disorder that causes widespread physical pain and discomfort. Researchers are still working to understand where the disease comes from, which can be frustrating for those who have it. For this reason, support groups exist to bring those with fibromyalgia together, in a safe, validating environment. If you have signs of fibromyalgia, joining a support group may benefit you in multiple ways.
To learn more about Los Angeles clinical trials for fibromyalgia or other forms of medical issues, contact the Pacific Institute of Medical Research, which is an independent clinical research site specializing in psychiatry since 1982. Visit us online or call us at (310) 208-7144.